by roseandgold | Sep 10, 2025 | Advocacy, Bleeding Disorders, Chronic Conditions, Chronic Illness, Community, Hemophilia Walk New England, Mylyfe, Mylyfe Specialty Pharmacy, NEHA Walk 2025, Unite for Bleeding Disorders Walk 2025
Community is at the heart of living well with a bleeding disorder. This September, the New England Hemophilia Association (NEHA) will host its 2025 Unite for Bleeding Disorders Walk, a powerful event designed to bring together individuals, families, caregivers,...
by roseandgold | Mar 20, 2025 | Advocacy, Chronic Conditions, Chronic Illness, Emotional Impact of Diagnosis, Managing a New Diagnosis, Mylyfe, Mylyfe Specialty Pharmacy, Navigating a Medical Diagnosis, Specialty Pharmacy
Receiving a new diagnosis can feel like an overwhelming, life-altering event. Whether it’s a chronic condition or a sudden diagnosis, the initial steps you take are crucial in navigating the journey ahead. It’s normal to feel a mixture of emotions—fear, confusion,...
by roseandgold | May 10, 2024 | Advocacy, Chronic Conditions, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Hemophilia Moms, Mylyfe
As Mother’s Day approaches, it’s a time to celebrate and honor the incredible women who have shaped our lives and communities. In the hemophilia and chronic illness community, mothers play a vital role in supporting their loved ones and advocating for...
by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support
Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
