by roseandgold | Sep 17, 2025 | Bleeding Disorders, Chronic Condition Support, Chronic Conditions, Chronic Illness, Community, Emotional Support for Chronic Illness, Encouragement, Managing Bleeding Disorders, Managing Chronic Illness, Mindfulness, Mylyfe, Reduce Stress with Chronic Illness, Support
Living with a chronic condition can feel like carrying an invisible weight. The daily symptoms, frequent appointments, and uncertainty about the future often create added stress that takes a toll on both mental and physical health. While medical care addresses the...
by roseandgold | Sep 10, 2025 | Advocacy, Bleeding Disorders, Chronic Conditions, Chronic Illness, Community, Hemophilia Walk New England, Mylyfe, Mylyfe Specialty Pharmacy, NEHA Walk 2025, Unite for Bleeding Disorders Walk 2025
Community is at the heart of living well with a bleeding disorder. This September, the New England Hemophilia Association (NEHA) will host its 2025 Unite for Bleeding Disorders Walk, a powerful event designed to bring together individuals, families, caregivers,...
by roseandgold | Aug 19, 2025 | Autoimmune Diseases, Chronic Condition Support Group, Chronic Conditions, Chronic Illness, Community, Mindfulness, Mylyfe, Mylyfe Specialty Pharmacy, Rare Condition Community, Rare Disease Isolation
Living with a rare disease often feels like navigating life on an island, cut off from understanding, support, and connection. With over 300 million people worldwide affected by rare conditions, the sense of isolation is real but not inevitable. The journey from...
by roseandgold | May 13, 2025 | Chronic Condition Support, Chronic Conditions, Chronic Illness, Community, Emotional Support for Chronic Illness, Mindfulness, Mylyfe, Mylyfe Specialty Pharmacy, National Women’s Health Week, Support, Women’s Health
Every May, beginning on Mother’s Day, the nation turns its attention to a vital cause: women’s health. National Women’s Health Week (May 12–18, 2025) is more than a calendar observance, it’s a call to action for women of all ages to take charge of their well-being,...
by roseandgold | Jan 10, 2025 | 2025 Goals, Chronic Conditions, Chronic Illness, Community, Hemophilia Awareness, Immune System Support, Managing Bleeding Disorders, Managing Chronic Illness, Mindfulness, Mylyfe, Mylyfe Specialty Pharmacy, Support
The start of a new year often comes with a surge of motivation to set fresh goals, especially when it comes to health and wellness. It’s the perfect time to reassess habits, embrace positive changes, and work toward a healthier, more balanced lifestyle. However, if...
by roseandgold | Dec 5, 2024 | Bleeding Disorders, Chronic Conditions, Community, Encouragement, Managing Bleeding Disorders, Mylyfe, Mylyfe Specialty Pharmacy
Navigating life with hemophilia can be daunting, but building a strong support network within the community can make all the difference. Local chapters of national organizations like the National Bleeding Disorders Foundation (NBDF) and the Hemophilia Federation of...
