Blogs
Parenting with Chronic Illness: Strategies for Thriving
Parenting can be a rewarding journey filled with laughter, love, and a few challenges. However,...
The Importance of Community for Chronic Illnesses
If you have a chronic illness, you might find that it can be a lonely and isolating journey....
Summer Camp Safety for Kids with a Chronic Illness
Summer camps offer incredible opportunities for kids and teens to explore, learn, and build...
Good Hygiene and Hand Washing Before an Infusion When Managing a Chronic Illness
Living with a chronic illness often means regular medical treatments, including infusions,...
Fun Outdoor Activities for Children with Chronic Illness
Spring is the best time to enjoy outdoor activities. The warm sun, bright flowers, and cool...
Honoring Mothers in the Chronic Illness Community
As Mother's Day approaches, it's a time to celebrate and honor the incredible women who have...
At-Home Infusion Nursing for IG Treatments
Prioritizing wellness is key to leading a fulfilling life. Intravenous Immunoglobulin (IVIG) ...
Mylyfe’s Commitment to Earth Month and Going Green
As Earth Month approaches, the global community gears up to celebrate environmental...
Recognizing Hemophilia Caregivers
Living with a genetic bleeding disorder has many challenges, not just for the individuals...
Hemophilia Advocacy Month
March is more than just a month—it's a time to stand up for those living with hemophilia and...
How Specialty Pharmacies Bring a Personal Touch to Hemophilia Care
Living with hemophilia isn't just about managing a medical condition; it's about navigating a...
The Role of Specialty Pharmacies in Hemophilia Care
Hemophilia is a rare genetic disorder characterized by a deficiency in clotting factors, which...
Hemophilia Nutrition for Management
Hemophilia is a rare genetic disorder characterized by a deficiency in blood clotting factors,...
Navigating the Intersection: Living with HIV and Hemophilia
Navigating the intersection of living with HIV and hemophilia poses unique challenges that...
How To Be a Hemophilia Ally
Hemophilia is a rare bleeding condition impacting individuals globally, and if you have a loved...
Understanding Immunoglobulin Deficiencies and Their Relationship to Hemophilia
Immunoglobulin deficiencies are a group of disorders characterized by a weakened immune system,...
Managing Chronic Illness and Your Career
Living with a chronic illness, such as hemophilia, brings unique challenges to the workplace....
Frequent Bleeds and Joint Damage: Improved Joint Health in Hemophilia & Related Bleeding Disorders
Living with hemophilia and other bleeding disorders presents a unique set of challenges, and...
Finding a Physician For Hemophilia Treatment
When you or a loved one is diagnosed with hemophilia, finding the right physician becomes...
Understanding Immunoglobulins: The Body’s Frontline Defenders
In our bodies, the immune system stands as a vigilant protector, tirelessly defending us...
How Communities Benefit People with Chronic Illnesses
Living with a chronic illness can be an incredibly challenging experience. The physical and...
Bleeding Disorder Diagnosis in Children: Back-to-School Edition
Hemophilia and other bleeding disorders are conditions that affect the blood’s ability to clot....
How to Discuss Hemophilia and Medical Diagnoses with Children
As a parent, it can be incredibly challenging to talk with your child about their medical...
The Impact of Chronic Illnesses on Mental Health
Living with a chronic illness or chronic pain can be a challenging and isolating experience...
The Journey to Summer Camp for Children with Bleeding Disorders
Summer camp can be an exciting and fun-filled experience every child looks forward to and a...
Unveiling Inhibitors in Hemophilia Treatment
Hemophilia, a genetic disorder primarily affecting the blood's clotting mechanisms, is...
The Best Way to Record Bleeds: A Comprehensive Guide
When it comes to managing hemophilia or any bleeding disorder, keeping accurate records of...
Nutrition and Hemophilia: What to Eat and What to Avoid
Maintaining a healthy diet is essential for everyone, but it holds particular significance for...
Chronic Illness and Isolation
Living with chronic illness can be an isolating and challenging experience for many of us. If...
Chronic Illness and Depression
Mental Health Awareness Month is an important time to shine a light on the impact of chronic...
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