by roseandgold | Nov 17, 2023 | Bleeding Disorders, Hemophilia
Living with hemophilia and other bleeding disorders presents a unique set of challenges, and understanding the intricacies of the condition is crucial for both patients and their healthcare providers. One critical aspect that often requires attention is the connection...
by roseandgold | Sep 29, 2023 | Bleeding Disorders, Chronic Conditions, Community, Mylyfe
Living with a chronic illness can be an incredibly challenging experience. The physical and emotional toll it takes can often leave individuals feeling isolated, misunderstood, and overwhelmed. However, there is a powerful tool that can provide solace, support, and...
by roseandgold | Sep 28, 2023 | Bleeding Disorders, Chronic Conditions, Hemophilia, Mylyfe, Tips
Hemophilia and other bleeding disorders are conditions that affect the blood’s ability to clot. People with hemophilia have low levels or lack of certain proteins called clotting factors, which help stop bleeding when an injury occurs. Without enough clotting factors,...
by Mylyfe | Aug 22, 2023 | Bleeding Disorders, Chronic Conditions, Hemophilia, Tips
As a parent, it can be incredibly challenging to talk with your child about their medical diagnosis, especially when it involves a condition like hemophilia. You may feel overwhelmed and unsure about approaching the topic, but remember you are not alone. With the...
by Mylyfe | Jul 19, 2023 | Bleeding Disorders, Community, Encouragement, Hemophilia, Tips
Summer camp can be an exciting and fun-filled experience every child looks forward to and a great opportunity to have fun, make new friends, and learn new skills. For parents of children with bleeding disorders and hemophilia, it can also be a catalyst for...
by Mylyfe | Jul 11, 2023 | Bleeding Disorders, Hemophilia
Hemophilia, a genetic disorder primarily affecting the blood’s clotting mechanisms, is characterized by excessive bleeding due to a deficiency or malfunction of clotting factors VIII, IX, and other rare factor deficiencies. This often leads to spontaneous or...
