by roseandgold | May 20, 2024 | Chronic Conditions, Chronic Illness, Hemophilia, Mylyfe, Safety Tips, Tips
Spring is the best time to enjoy outdoor activities. The warm sun, bright flowers, and cool breeze are perfect for children to explore and enjoy. This is all the more reason for children with chronic illnesses to get outside and enjoy the season! Engaging in outdoor...
by roseandgold | May 10, 2024 | Advocacy, Chronic Conditions, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Hemophilia Moms, Mylyfe
As Mother’s Day approaches, it’s a time to celebrate and honor the incredible women who have shaped our lives and communities. In the hemophilia and chronic illness community, mothers play a vital role in supporting their loved ones and advocating for...
by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support
Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
by roseandgold | Mar 14, 2024 | Bleeding Disorders, Chronic Conditions, Genetic Bleeding Disorder, Hemophilia, Hemophilia Awareness, Hemophilia Treatment, Mylyfe
March is more than just a month—it’s a time to stand up for those living with hemophilia and all bleeding disorders. Hemophilia Advocacy Month shines a spotlight on the challenges faced by individuals and families who live with a genetic bleeding disorder. As we...
by roseandgold | Feb 22, 2024 | Bleeding Disorders, Chronic Conditions, Hemophilia, Mylyfe, Specialty Pharmacy
Living with hemophilia isn’t just about managing a medical condition; it’s about navigating a unique journey that requires support, understanding, and personalized care. In this blog, we’ll explore how specialty pharmacies are making a real...
by roseandgold | Feb 14, 2024 | Bleeding Disorders, Chronic Conditions, Hemophilia, Mylyfe, Patient Education, Specialty Pharmacy
Hemophilia is a rare genetic disorder characterized by a deficiency in clotting factors, which leads to prolonged bleeding episodes and impaired blood clotting. Individuals with hemophilia face unique challenges in managing their condition, requiring specialized care...
