by roseandgold | Sep 20, 2024 | Bleeding Disorders, Chronic Conditions, Chronic Illness, Hemophilia, Mylyfe Specialty Pharmacy, Support
Bleeding disorders might not always be at the forefront of public consciousness, but they affect many lives with profound impact. From hemophilia to von Willebrand disease, these conditions require constant management and support. So, how can we, as individuals and...
by roseandgold | Jul 24, 2024 | Chronic Conditions, Chronic Illness, Mylyfe, Mylyfe Specialty Pharmacy, Parenting with Chronic Illness, Support
Parenting can be a rewarding journey filled with laughter, love, and a few challenges. However, managing a chronic illness can sometimes feel overwhelming. It’s important to remember that you’re not alone. With the right strategies and a positive mindset,...
by roseandgold | Jul 10, 2024 | Chronic Conditions, Chronic Illness, Community, Hemophilia, Local Support Groups, Support
If you have a chronic illness, you might find that it can be a lonely and isolating journey. You have the constant management of symptoms, frequent doctor visits, and the everyday challenges of navigating a world that often doesn’t understand can take a toll on...
by roseandgold | Jun 21, 2024 | Chronic Illness, Health, Kids with Chronic Illness, Mylyfe Specialty Pharmacy, Safety Tips, Summer Camp Safety, Support, Tips, Uncategorized
Summer camps offer incredible opportunities for kids and teens to explore, learn, and build friendships. However, for children with chronic illnesses, ensuring their safety and well-being requires additional planning and consideration. Here’s a comprehensive guide to...
by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support
Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
