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Honoring Mothers in the Chronic Illness Community

Honoring Mothers in the Chronic Illness Community

by roseandgold | May 10, 2024 | Advocacy, Chronic Conditions, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Hemophilia Moms, Mylyfe

As Mother’s Day approaches, it’s a time to celebrate and honor the incredible women who have shaped our lives and communities. In the hemophilia and chronic illness community, mothers play a vital role in supporting their loved ones and advocating for...
Recognizing Hemophilia Caregivers

Recognizing Hemophilia Caregivers

by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support

Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
Hemophilia Advocacy Month

Hemophilia Advocacy Month

by roseandgold | Mar 14, 2024 | Bleeding Disorders, Chronic Conditions, Genetic Bleeding Disorder, Hemophilia, Hemophilia Awareness, Hemophilia Treatment, Mylyfe

March is more than just a month—it’s a time to stand up for those living with hemophilia and all bleeding disorders. Hemophilia Advocacy Month shines a spotlight on the challenges faced by individuals and families who live with a genetic bleeding disorder. As we...
How Specialty Pharmacies Bring a Personal Touch to Hemophilia Care

How Specialty Pharmacies Bring a Personal Touch to Hemophilia Care

by roseandgold | Feb 22, 2024 | Bleeding Disorders, Chronic Conditions, Hemophilia, Mylyfe, Specialty Pharmacy

Living with hemophilia isn’t just about managing a medical condition; it’s about navigating a unique journey that requires support, understanding, and personalized care. In this blog, we’ll explore how specialty pharmacies are making a real...
The Role of Specialty Pharmacies in Hemophilia Care

The Role of Specialty Pharmacies in Hemophilia Care

by roseandgold | Feb 14, 2024 | Bleeding Disorders, Chronic Conditions, Hemophilia, Mylyfe, Patient Education, Specialty Pharmacy

Hemophilia is a rare genetic disorder characterized by a deficiency in clotting factors, which leads to prolonged bleeding episodes and impaired blood clotting. Individuals with hemophilia face unique challenges in managing their condition, requiring specialized care...
Hemophilia Nutrition for Management

Hemophilia Nutrition for Management

by roseandgold | Jan 30, 2024 | Bleeding Disorders, Chronic Conditions, Hemophilia, Nutrition

Hemophilia is a rare genetic disorder characterized by a deficiency in blood clotting factors, specifically factors VIII (hemophilia A) or IX (hemophilia B). Individuals with hemophilia often face unique challenges, requiring a careful and tailored approach to their...
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