by roseandgold | Dec 5, 2024 | Bleeding Disorders, Chronic Conditions, Community, Encouragement, Managing Bleeding Disorders, Mylyfe, Mylyfe Specialty Pharmacy
Navigating life with hemophilia can be daunting, but building a strong support network within the community can make all the difference. Local chapters of national organizations like the National Bleeding Disorders Foundation (NBDF) and the Hemophilia Federation of...
by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support
Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
by Mylyfe | Aug 14, 2023 | Chronic Conditions, Encouragement, Mindfulness
Living with a chronic illness or chronic pain can be a challenging and isolating experience that can significantly impact mental health and emotional well-being. Managing the physical symptoms of the condition, along with the stress, worry, depression, and anxiety...
by Mylyfe | Jul 19, 2023 | Bleeding Disorders, Community, Encouragement, Hemophilia, Tips
Summer camp can be an exciting and fun-filled experience every child looks forward to and a great opportunity to have fun, make new friends, and learn new skills. For parents of children with bleeding disorders and hemophilia, it can also be a catalyst for...
by Mylyfe | May 9, 2023 | Chronic Conditions, Encouragement, Mindfulness
Mental Health Awareness Month is an important time to shine a light on the impact of chronic illness and depression. It’s estimated that 1 in 5 adults in the US experience some form of mental illness each year. When you’re dealing with a chronic illness,...
by Mylyfe | Feb 7, 2023 | Encouragement
Many people with chronic illnesses or other health concerns need frequent infusions, blood draws, or other interactions with needles. However, what happens if you have a fear of needles? Knowing there is a necessary treatment that requires you to face something you...
