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How You Can Help Support the Bleeding Disorder Community

How You Can Help Support the Bleeding Disorder Community

by roseandgold | Sep 20, 2024 | Bleeding Disorders, Chronic Conditions, Chronic Illness, Hemophilia, Mylyfe Specialty Pharmacy, Support

Bleeding disorders might not always be at the forefront of public consciousness, but they affect many lives with profound impact. From hemophilia to von Willebrand disease, these conditions require constant management and support. So, how can we, as individuals and...
The Role of Technology in Managing Bleeding Disorders

The Role of Technology in Managing Bleeding Disorders

by roseandgold | Sep 10, 2024 | Chronic Conditions, Chronic Illness, Hemophilia, Hemophilia Treatment, Mylyfe, Mylyfe Specialty Pharmacy

Living with a bleeding disorder can be challenging, but advancements in technology are making it easier to manage these conditions and improve the quality of life for those living with chronic illness. From innovative diagnostic tools to cutting-edge treatments,...
Hemophilia Myths vs. Facts

Hemophilia Myths vs. Facts

by roseandgold | Aug 25, 2024 | Hemophilia, Hemophilia Awareness, Hemophilia Symptoms, Hemophilia Treatment, Mylyfe, Mylyfe Specialty Pharmacy

Hemophilia is a rare, lifelong genetic condition primarily affecting blood clotting ability. While known to medical science for centuries, it is still surrounded by many myths and misconceptions. These myths can lead to unnecessary fear, mismanagement, and even social...
The Importance of Community for Chronic Illnesses

The Importance of Community for Chronic Illnesses

by roseandgold | Jul 10, 2024 | Chronic Conditions, Chronic Illness, Community, Hemophilia, Local Support Groups, Support

If you have a chronic illness, you might find that it can be a lonely and isolating journey. You have the constant management of symptoms, frequent doctor visits, and the everyday challenges of navigating a world that often doesn’t understand can take a toll on...
Fun Outdoor Activities for Children with Chronic Illness

Fun Outdoor Activities for Children with Chronic Illness

by roseandgold | May 20, 2024 | Chronic Conditions, Chronic Illness, Hemophilia, Mylyfe, Safety Tips, Tips

Spring is the best time to enjoy outdoor activities. The warm sun, bright flowers, and cool breeze are perfect for children to explore and enjoy. This is all the more reason for children with chronic illnesses to get outside and enjoy the season! Engaging in outdoor...
Honoring Mothers in the Chronic Illness Community

Honoring Mothers in the Chronic Illness Community

by roseandgold | May 10, 2024 | Advocacy, Chronic Conditions, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Hemophilia Moms, Mylyfe

As Mother’s Day approaches, it’s a time to celebrate and honor the incredible women who have shaped our lives and communities. In the hemophilia and chronic illness community, mothers play a vital role in supporting their loved ones and advocating for...
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